Today we were updated with Bubb's condition. The episodes have in-fact been seizures in the lower left part of his brain, located in the occipital lobe. They are unsure as to how or why they started happening, but could be due to the development of that area.
The seizures haven't caused any damage to the brain or pain to him. Where some seizures cause a body to shake or convulse, his seizures were causing his chest and lungs to constrict and his oxygen levels to drop. They were lasting, on average, about 20 seconds and happening every 1 to 2 hours. Because seizures take such a toll on the brain, exhaustion is normal after having one.
From the monitors, the Dr's told us his activity looked completely normal for his age and that his overall development looked just fine. It seems the seizures weren't causing any abnormal behaviors.
When seizures occur in babies under a year old, there is a chance it could inhibit his mental progress or physical development and, in sever cases, retardation.
He will be medicated for the next two years on Trileptol, which is used to prevent and control seizures. The down-side to this is how groggy and lethargic its making him. We are told as his body gets used to it, after a couple weeks, he should return to his normal self. If he is still tired it means he is still seizing, and we'll have to up his dose or change medications. We will also go home with Diastat (also called Valium) to give in case of an emergency that is used to calm the body.
We will be able to go home tonight, but will return Monday for an MRI. I will update again on those results. If there are any prolonged changes or missed milestones in his development, we will receive at home care for physical therapy and anything else that may seem wrong.
Our smiley little Bubs hasn't been happy like usual, and its very hard to to see him in this condition, but we're grateful for the information we've been given. We hope, with continued care and lots of prayers, everything will return to normal and after two years, he won't need medication.
Last night, before given Trileptal
Today, lethargic and mellow
Somewhat interested in the toys
Tired
These are the brain monitors, being removed
No longer my wizard
Low key
My energetic Bubba is gone for a while, but I hope he comes back soon
10 comments:
Oh Page (((HUGS))) I am glad you wee able to update you Blog and all of us out here praying for all of you. I am sop glad the doctors were able to figure out what it was and pray the medication works well for him and that you have our bubbly bubba back soon.
Poor Bubbs! I'm glad they kind of have a handle on what's going on, but I hope things get back to normal sooner rather than later. Thanks for the updates. I won't call 'cause I'm sure you've been getting lots of those. Call me if you need anything! Love you guys!
Wow Paige, glad to hear he's okay. My husband has epilepsy and is medication 2x/day. We've been through all sorts of testing and meds and finally found something that works. I hope things go well in the next few weeks!
Sweet little baby boy! I just can't imagine how you and Johnny are feeling right now, probably somewhat relieved but still very wary? We will be praying for your sweet little family.
What an ordeal. Poor little guy. I am glad they were able to give you some answers. Hopefully things just keep getting better.
Paige I hope that things will get back to normal soon. At least you got some answers and they are doing what they can for him. I'll still be thinking about you and your family and praying that things work out for you guys. Much love XOXO
I'm so glad your little guy is doing better! Really Really let us know if you guys need something, babysitting. dinner, chocolate, whatever you need!
Paige I am so sorry you guys are having to go throught this. It's breaking my heart to see little Bubbs in all that hospital gear. I hope everything gets better and that the medication works as it should. I'm thinking and praying for you guys. Love you!
What a sweet lover! And such a trooper he is. We are praying for you guys--thanks so much for the updates and pictures. I'm glad they know what's going on with him and those meds can help and that he'll be back to his smiley self soon.
XOXO Aunt Chris
i'm so sorry you guys! your fam is in our prayers! i'm sure you'll have your bubba back in no time.
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